This week has brought tearful news of two of our Sugar families, and I think that every prayer, every good thought, and every wish for peace and strength and love is very needed.
Alexa is such a little fighter. She is such a joy to everyone that meets her, and I have been so saddened by her CaringBridge site this week as her family documents her sudden decline in health. I hope this little one can pull through and return home to her beloved baby brother, her cute parents, and everything in her life that brings her joy.
Lila was born earlier this week, and is the baby sister of Juliette. Doctors discovered her heart condition after birth, and her 6 hour surgery is scheduled for Friday morning. They say that the first 48 hours are the most critical, and I would love nothing more than to photograph this sweet baby girl, at home with her big sister, and to celebrate her life.
Please keep these families in your thoughts and prayers.
Jen
5 Comments
Sigh. Keeping them in my thoughts.
praying for these families!
My good friend just a baby girl that had open heart surgery to repair 4 holes in her heart when she was not even 24 hours old… these little babies are fighters!!
Prayers said, God bless all involved.
My thoughts and prayers are with them.
I have been reading your blog for quite a while now. I am a heart mom to Maggie Jane. We too found out about Maggie’s severe heart defect right before she was to go home from the hospital. She has had 2 open heart surgeries, and should have her last surgery next summer. I love talking to other heart moms going through what we are/have gone through. Please share my email with Lila’s family if you are able.
I just got done volunteering for a week at Camp Rhythm here in St. Louis. It is a week long summer camp for kids with heart defects. It was amazing!
These families will be in my prayers.